Taking ownership of my own health

I am delighted to present to you all a guest post from fellow scientist, Lyme patient, and dear friend Niamh. In this post she discusses the challenges, as a scientist, of moving away from allopathic medicine in her quest for health and healing.

Niamh is a passionate researcher, writer and soul searcher. She seeks to impart greater understanding of chronic illness and to defy the social stigma which surrounds it.

You can find out more at her website: lymesoul. Enjoy!

A Change in Perspective

​As a scientist, I have always been highly sceptical of any kind of alternative or “holistic” treatment. As a chemist, I have huge faith in the efficacy of pharmaceuticals and, before reaching a life-altering juncture in my illness, my life plan was to design therapeutic drugs. I had been lucky for most of my life to reside on one side of the fence: a far-removed world of Molecule Construction, seeking out new and fabulous structures which could modulate a specific biological response. My mind was occupied with the purely academic side of “making a difference” and gaining recognition in something which might just wipe out some uncontroversial, life-altering disease.  The notion of illness was just that: a notion. A concept which I could conceive of on a purely intellectual basis. I had never felt first-hand the dramatic effects of a life-threatening disease; more specifically, I had never even considered the effects of grappling with an illness for which there was no known cure, little recognition from the established medical community, and consequently little respect for the suffering patient. When Lyme disease shattered my life, or so I believed, I saw only darkness: I was reminded each day of everything I had lost, from my mobility to my own cognitive function and ability to process information. Lyme chose rather indiscriminately and did not care one iota that I was a scientist or that I had a solid life plan. And just like that, I was standing on the other side of the fence, no longer capable of operating in the world of Molecule Construction, feeling utterly abandoned by our allopathic medical community. Just like that, I experienced for the first time in my life, the devastation that disease wreaks; I was the patient for whom I had once aspired to design a life-saving treatment. But now and for the rest of my life, this will no longer be a concept, but rather an earth-shattering reality. It takes time to readjust and to reorient oneself when one has completely lost one’s balance; but I no longer view my disease solely within the context of lack. In fact, there is one truth which I know in the very fibres of my being, a reality which I will own forever:

I will never stop being a scientist.

This disease may slow my path or set obstacles along the way. It may not present a smooth thoroughfare, but my progress will not be impeded. And now, thanks to Lyme, I have experience of both sides of the fence. Now, I feel blessed to know first-hand what it is like to reside in the world of Molecule Construction and in the world of the disabled patient. The difference between then and now is that today I am imbued with an even stronger desire to relieve the pain of those who suffer, often without hope, without a cure for their disease, and without medical recognition. This is not something which Lyme disease robbed from me. This is a gift.

Alternative Approaches to Lyme Disease Treatment 

This new chapter of my life has been somewhat transformative through the empowerment associated with claiming ownership of my own body and its intrinsic capacity to heal. Over the course of ten months, I tried everything within my reach to combat this disease, ultimately discovering the power of a more holistic, naturopathic approach to treatment.

My initial decision was to undertake a treatment protocol which relied heavily upon pharmaceuticals, primarily antibiotics, prescribed by one of the most well-established Lyme specialists in the United States. During this three month period, I deteriorated significantly to the point where I was bed-bound and unable to perform daily tasks. Following a brief period of hospitalisation, during which the complete lack of knowledge surrounding my disease became excruciatingly apparent, I made the radical decision to terminate all pharmaceutical treatments and to seek alternative methods for restoring my health. At this point, the lowest point in my illness, I spent my days researching chronic Lyme disease and any treatments which might potentially provide relief. My research brought me to the Hero and Heroine of my story thus far: Stephen Harrod Buhner, an herbalist specialising in Lyme disease treatment, and Dr Terry Wahls, a physician who reversed her diagnosis of secondary progressive multiple sclerosis through the development of her own targeted nutritional programme  (The Wahls Protocol).

An excellent account by Dr Terry Wahls on how she achieved recovery and the resetting of damaged mitochondria through diet: Minding Your Mitochrondria

Another three months passed by, during which I devoted myself to the self-administration of a tailored Buhner-inspired herbal protocol, in combination with a radical Wahls-inspired nutritional programme designed to reverse immune dysfunction.

During this time, I have observed dramatic improvements in both my physical and mental capacities, I have transitioned from being virtually bed-bound and severely underweight to gaining sufficient strength and stamina to leave the house quite regularly. I have a long journey to full restoration, but I owe these improvements to embracing a new healing paradigm, an approach which might once have confounded me as a scientist. In the absence of knowledge and support of my disease from the allopathic medical community, I have taken ownership of my own body, my own healthcare, and my own intuitive capacity. If there is one thing this journey has taught me so far, it is this:

You know your body better than anyone on the outside.

If you self-educate and become an expert in listening to and hearing your own body’s cues, I am beginning to discover that you can heal physiological damage on a cellular level. For example, I am intrigued by the concept of restoring diminished mitochondrial efficiency using food as medicine, and am enjoying the benefits of increased energy through strict adherence to a ketogenic diet. As scientists, I believe strongly that we must remain open-minded, being willing to make an informed judgement based on empirical results as opposed to being trapped by certain preconceived logic.

​I hope to share more of my experiences relating to herbal medicines and the Wahls-inspired ketogenic diet, but in the meantime, I feel privileged and inspired when others share with me their experiences of becoming executives in the provision of their own healthcare.  Don’t hesitate to contact me…

 

Wellness Wednesdays, and making time for me

You should sit in meditation for twenty minutes every day. Unless you are too busy; then you should sit for an hour.

Zen proverb

A friend shared this proverb with me a long time ago, and I often think of it when I am struggling with my own meditation practice, dietary habits, and all the other things that I try and prioritise because I believe they make a difference to my wellbeing.

There is no denying that we live in an incredibly fast-paced world. The level of expectation on all of us to achieve and to ‘do’, is crazy, and finding the space to slow down and take time out for ourselves is becoming increasingly difficult. However, I do also think that it is our own responsibility to choose what we prioritise. The phrase “I don’t have time for that” is one of my biggest bug-bears, even though I catch myself saying it often, if not out loud then at least in my head. Because what we really mean when we say “I don’t have time for that”, is “that’s not a priority for me”. How can I tell myself I don’t have the time for meditation today while watching dog videos on facebook or googling some shit that I really have no need to google? And when I write it on my blog it sounds totally ridiculous and stupid, but it is a genuine struggle to make time for the things that really matter when technology provides us with constant distractions.

There are lots of things I try to prioritise in order to help my health. This includes eating a paleo diet, which means cooking pretty much everything from scratch and very few shortcut meals like pizza or sandwiches or pasta. It includes regular meditation which I know has a positive effect on my stress levels and therefore on my health. I have found that the key to a successful regular meditation practice is setting aside the same time every day in which to do it. But this brings its own challenges, especially since the only time I reliably have free every day is first thing in the morning. And getting up half an hour earlier is all well and good when I’m feeling well, but when I am sick and literally feel like I have the flu, it’s not so easy. Stress is a huge trigger for my health and so I try really hard to not overdo it, to keep at least a couple of evenings every week free in my diary for rest and recuperation, and to allow myself plenty of downtime. But this becomes increasingly difficult the better I feel. If I’m having a good day or a good week then I want to do absolutely everything right now – I want to embrace the good and make the most of it, because I know there is a good chance tomorrow won’t be so good.

I am grateful that chronic illness has shown me the importance of looking after myself. I am grateful that I know how to take care of myself and that I have the resources to do so. But, I am still human after all. I still have a job, a house to look after, a relationship to nurture, friendships to cherish, rabbits to take care of… as well as all the stresses of chronic illness.

So this week I have introduced ‘Wellness Wednesdays’ into my life! This is one day of the week where I promise to myself – no social media, no excessive scrolling through google, no rushing around like a headless chicken. Today I have meditated, I have eaten well, I have rested, and I have chosen to prioritise the things that nourish me. That’s not to say I won’t try to do all of those things again tomorrow. I try to do them every day, but I also accept that it is not always easy. Wellness Wednesdays is an opportunity for me to remind myself of what really matters. To prioritise me. I would love to have some company in my quest for Wellness Wednesdays, so if you fancy joining in, message me!